Akademik Veri Yönetim Sistemi
Journal of Pediatric Nursing, cilt.83, ss.183-189, 2025 (SCI-Expanded)
Background: Congenital anomalies of the central nervous system (CNS) pose significant challenges for affected children and their families. Despite extensive research on children with such disorders, studies addressing the quality of life of their primary caregivers remain limited. This study aims to fill this gap by focusing on assessing the quality of life of parents who are primary caregivers of children with CNS congenital anomalies under neurosurgical care. Methods: This descriptive, cross-sectional study assessed the quality of life of 44 parents primary caring for children with CNS congenital anomalies under neurosurgical care at a university hospital. Data were collected via the Parent Introduction Information Form and the WHO Quality of Life Questionnaire-Short Form (WHOQOL-SF). The data were assessed via SPSS. Results: Primary caregivers parents reported the lowest quality of life scores in the social domain and the highest in the environmental domain. The child's gender significantly affects the social quality of life, whereas the type of diagnosis significantly affects the physical quality of life. Economic status affects the environmental quality of life, and low-income families face greater challenges. Conclusion: Caring for children with CNS abnormalities profoundly impacts parents' quality of life. The findings highlight the need for targeted interventions, including economic and social support, to improve caregiver well-being.